Perception of persons with ataxia
Keywords:
Spinocerebellar ataxias (SCA), self-presentation, perception of persons with ataxia, image, neurological speech disordersAbstract
Aim. The aim of the paper is to present the reasons of the forming of erroneous, unfavourable perception of persons with spinocerebellar ataxia.
Concept. Spinocerebellar ataxias (SCA) are a group of degenerative disorders leading to damage of the cerebellum and its connections (Klockgether, Paulson, 2011). The following are distinguished among the neurological speech difficulties present in persons with SCA: dysphagia (difficulties with swallowing leading to problems with eating), speech disorders, and mental disorders. Each of these groups of disorders may lead to the stigmatisation of persons with SCA. Such persons might be seen as sloppy and helpless, and the specificity of speech impairments and uncoordinated movements as well as their irregular gait may cause these persons to be perceived as inebriated. Such presumptions lead to difficulties in social functioning and may be the cause of discrimination, including the denial of help.
Conclusion: What is helpful in combating prejudice is, first and foremost, the dissemination of knowledge about the condition, including launching social campaigns presenting the labelled symptoms of SCA.
What is more, work with the patient ought to be focused on the development of coping strategies in the social environment rather than alleviating physical difficulties exclusively.
Downloads
References
Boesch S. M., Frauscher B., Brandauer E., et al.: (2006). Disturbance of Rapid Eye Movement Sleep in Spinocerebellar Ataxia Type 2. Mov Disord, 21(10, 1751-1754.
Borkenau, P., Liebler, A., (1992). Trait in Sources of validity at zero acquaintance. Journal of Personality and Social Psychology, 31, 567-573
Burk K., Bosch S., Globas C., et al. (2001). Executive Dysfunction in Spinocerebellar Ataxia Type 1. Eur Neurol, 46, 43-48.
Burk K., Globas C., Bosch S., et al., (1999). Cognitive deficits in spinocerebellar ataxia 2 (SCA2). Brain, 122, 769-777
Cierpiałkowska, L.,(2014). Psychopatologia [Psychopatology] Łódź: Scholar: 2014.
Czernuszenko, A. (2016). Postępowanie w dysfagii neurogennej [Procedure in neurogenic dysphagia], Otolaryngologia, 15(2), 68-74
D’Agata F., Caroppo P., Baudino B., et al., (2011). The Recognition of Facial Emotions in Spinocerebellar Ataxia Patients. Cerebellum, 10, 600-610.
Durr A (2010). Autosomal dominant cerebellar ataxias: polyglutamine expansions and beyond. Lancet Neurol, 9, 885–894.
Globas Ch., du Montcel S.T., Baliko L., et al.: (2008). Early Symptoms in Spionocerebellar Ataxia Type 1, 2, 3, and 6. Mov Disord, 23(15), 2232-2238.
Heatherton, T.F., Kleck, R.E., M. R. Hebl, J.G. Hull (2008). Społeczna psychologia piętna [Social psychology of stigma], Warszawa: PWN
Jauer-Niworowska, O., Kwasiborska, J. (2009). Dyzartria. Wskazówki do diagnozy różnicowej poszczególnych typów dyzartrii [Dysarthria. Guidelines to differential diagnosis of the particular types of dysarthria]. Gliwice: Komlogo.
Kazimierska-Zając M., Rosińczuk-Tonderys J. (2011). Zaburzenia mowy w ataksji rdzeniowo–móżdżkowej jako wyzwanie dla logopedy [Speech disorders in spinocerebellar ataxia as a challenge to speech therapists]. In: A. Pozowski, S. Jarząb (eds.). Wybrane aspekty rehabilitacji [Selected aspects of rehabilitation]. Wrocław: Katedra Fizjoterapii. Akademia Medyczna im. Piastów Śląskich we Wrocławiu.
Klockgether T, Paulson H. (2011). Milestones in ataxia. Mov Disord 2011, 26, 1134–1141.
Lachowicz-Tabaczek, (2004). Potoczne koncepcja świata i natury ludzkiej [Popular conceptions of the world and human nature]. Gdańsk: GWP.
Leary, M. (2007). Wywieranie wrażenia na innych. O sztuce autoprezentacji [Making impression on others. On the art of self-presentation]. Gdańsk: GWP.
Maruff P., Tyler P., Burt T., et al. (1996). Cognitive deficis in Machado-Joseph disease. Ann Neurol, 40, 421-427.
Mazurkiewicz B., Oleksy A. (2012). Problemy psychologiczne związane z niepełnosprawnością [Psychological problems connected with disability]. In: B. Mazurkiewicz, E. Dmoch-Gajzlerska (ed.), Opieka położnicza nad pacjentkami niepełnosprawnymi [Obstetric care of patients with disabilities], (pp.14-28).Warszawa: PZWL.
McMurtray A. M., Clark D. G., Flood M. K., et al. (2006). Depressieve and Memory Symptoms as Presenting Features of Spinocerebellar Ataxia. J Neuropsychiatry Clin Neurosci, 18, 420-422.
Russell, Fazio, Carol, Williams (2002). Dostępność postaw jako czynnik pośredniczący w zależności między postawami a spostrzeganiem i postawami a zachowaniem. Badania nad wyborami z 1984 r [Availability of attitudes as a mediating factor between attitudes and perception and attitudes and behaviour. Research of choices of 1984]. In: E., Aronson (ed.) Człowiek jako istota społeczna. Wybór tekstów [Man as a social entity. Selection of papers] (pp.230-254). PWN: Warszawa.
Schalling E., Hartelius L. (2004). Acoustic Analysis of Speech Tasks Performed by Three Individuals with Spinocerebellar Ataxia. Folia Phoniatr Logop 56, 367-380.
Sękowski, A. E., Witkowska, B. (2004). Psychologiczna analiza postaw pracowników domów pomocy społecznej wobec mieszkańców z zaburzeniami psychicznymi [Psychological analysis of the attitudes of the staff of nursing homes towards residents with metal disorders], Roczniki Psychologiczne, t. VII, (1). 57-75
Sobczyk W., Piłkowska E., Sułek A., Niewiadomska M., Rakowicz M., Poniatowska R., Ryterski J., Pałka Ł., Goszczańska – Ciuchta A. (2005). Przewlekłe zespoły móżdżkowe [Chronic cerebellar disorders]. Postępy psychiatrii i neurologii, 14(1), 11-18.
Sokolovskya, N., Cookb, A., Hunta, H., Giuntib, P., Cipolottia, L., (2010). A preliminary characterisation of cognition and social cognition in spinocerebellar ataxia types 2, 1, and 7, Behavioural Neurology 23, 17–29
Stevanin G., Durr A., Brice A. (2000). Clinical and molecuar advances in autosomal dominant cerebellar ataxias: from genotype to phenotype and physiopathology. Eur. J. Hum. Genet, 8, 4-18.
Wojciszke, B. Psychologia Społeczna [Social psychology]. (2014), Scholar: Łódź.
Wolińska, J. (2015). Percepcja społeczna, stereotyp niepełnosprawności –perspektywa aktora i obserwatora [Social perception, stereotype of disability – perspective of the actor and the observer]. Annales Universitatis Mariae Curie-Skłodowska. Lublin-Polonia. VOL. XXVIII, 1, 45-66.
Zajonc. R.B., (1968). Attitudinal effects of mere exposure. „Journal of Personality and Social Psychology”, 9 ( 2). 1-27 1968.
Downloads
Published
Issue
Section
License
CC-BY
Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal. All authors agree for publishing their email adresses, affiliations and short bio statements with their articles during the submission process.